PDF) Linguistic validation of cystic fibrosis quality of life questionnaires

The purpose of this study was to validate the Portuguese translations of four cystic fibrosis quality of life questionnaires (CFQ). The first three were developed for patients with cystic fibrosis aged from 6 to 11 years, from 12 to 13 years and 14

Development and validation of a novel personalized electronic patient-reported outcome measure to assess quality of life (Q-LIFE): a prospective observational study in people with Cystic Fibrosis - eClinicalMedicine

Electronic health record phenotypes associated with genetically regulated expression of CFTR and application to cystic fibrosis

PDF) Cystic Fibrosis Questionnaire Reference Data in a healthy, Dutch population 6–20 yrs

Understanding and addressing the needs of people with cystic fibrosis in the era of CFTR modulator therapy - The Lancet Respiratory Medicine

PDF) Development and validation of The Cystic Fibrosis Questionnaire in the United States: a health-related quality-of-life measure for cystic fibrosis

Jornal Brasileiro de Pneumologia - Quality of life assessment in patients with cystic fibrosis by means of the Cystic Fibrosis Questionnaire

PDF] Validation of the Dutch cystic fibrosis questionnaire (CFQ) in adolescents and adults.

Identification of novel blood biomarkers of treatment response in cystic fibrosis pulmonary exacerbations by label-free quantitative proteomics

Symptom Burden in Patients With NTM Lung Disease

Frontiers TRACK-CF prospective cohort study: Understanding early cystic fibrosis lung disease